The following post comes to us via Ava Budavari-Glenn, a political communications major and a nonprofit communications minor who is entering her sophomore year at Emerson College. She is a writer whose work focuses mainly on advocacy, and a community organizer who has worked for nonprofit organizations and political campaigns. She is a media and communications intern at Planned Parenthood Advocates of Arizona.
It was the 1980s. All of a sudden, seemingly out of nowhere, thousands and thousands of people were dying from an illness that had never been seen before. The diagnosis was a death sentence. As soon as you had it, you would die painfully and quickly. The disease was AIDS, caused by a virus called HIV.
In the United States, this disease ravaged the LGBTQ community; gay and bisexual men were the hardest hit. The Reagan administration failed to acknowledge the disease, until Ronald Reagan’s press secretary laughed about it and called it the “gay plague.” Tired of the government’s inaction, the people decided to take matters into their own hands and formed the grassroots organization ACT UP (AIDS Coalition to Unleash Power) in 1987.
With modern medical treatment, people with HIV can live pretty normal lives.
They protested, made targeted demands, and created poster campaigns. They formed a network of community organizers in cities across the country, and employed radical protest strategies, such as the AIDS Memorial Quilt, which covered the National Mall with names of people who had died from the disease. They focused their targeted efforts on specific politicians, as well as the Food and Drug Administration and the Centers for Disease Control and Prevention. They did such an extensive amount of research that the activists essentially became scientists themselves. They were able to lower drug prices and get the FDA to approve experimental drugs for HIV at a quicker pace. They educated, diminished social stigma, and perhaps most important, supported medical advances that reduced AIDS-related deaths.
And finally, in 1996, scientists discovered the treatment that turned HIV from a death sentence to a chronic illness. Finally, after 15 years of tragic deaths, obsessive scientific research, and fiery activism, patients could live long and happy lives with a drug “cocktail” that could suppress the virus. Continue reading